Lobotomie (ook wel: leukotomie) is een chirurgische operatie die rond het midden van de 20e eeuw werd toegepast. Tijdens de ingreep wordt de verbinding van het voorhoofdsgedeelte van de hersenen en de rest van de hersenen en het zenuwstelsel door een insnijding bijna geheel verbroken. De chirurg boorde eerst twee gaten in de schedel van de plaatselijk verdoofde patiënt en maakte de incisie in de hersenen. Later ontstond een snellere, ’transorbitale’ methode zonder boren: een instrument werd onder plaatselijke verdoving boven de oogbol, onder het ooglid door, de schedel in gedreven en dan in de hersenen heen en weer bewogen.
Werking en Indicatie Gebied
De frontale hersenkwabben hebben een functie in “zelfsturendheid” en in het tot uiting komen van de eigen persoonlijkheid. Met lobotomie werd geprobeerd psychische stoornissen zoals schizofrenie te verhelpen, maar de effecten bleken onvoorspelbaar en hadden veel bijwerkingen. Hoewel tot in de jaren tachtig in Frankrijk en Denemarken nog enkele lobotomieën plaatsvonden, wordt de ingreep sinds de jaren zestig als barbaars beschouwd.
De criteria waaraan een patiënt moest voldoen waren tamelijk streng; in aanmerking kwamen depressie met risico op zelfmoord, chronische angststoornissen, en obsessieve-compulsieve aandoeningen die de patiënt verhinderden te functioneren. De oorspronkelijke methode was grof, maar naderhand werd de procedure verbeterd[1] en werden veel kleinere delen doorgesneden.
Ontwikkeling en Toepassing
Nobel Prijs Winnaar António Egas Moniz (foto Wikipedia)
De eerste systematische experimenten door de neuroloog António Egas Moniz en de chirurg Almeida Lima van de Universiteit van Lissabon dateren van 1935, waarbij de frontale cortex en de rest van de hersenen werd doorgesneden. De resultaten waren tamelijk goed, in het bijzonder bij de behandeling van ernstige depressie, hypochondrie, en angst- of dwangstoornissen, hoewel sterke persoonlijkheidsveranderingen optraden en 4 procent van de patiënten de operatie niet overleefde.[2] Ondanks deze risico’s werd de methode vooral in de VS met enthousiasme begroet als behandelwijze voor anders onbehandelbare aandoeningen. Moniz kreeg in 1949 zelfs een Nobelprijs. Zijn methode wordt doorgaans ‘lobotomie’ genoemd, hoewel dit eigenlijk een term is voor een breder scala aan chirurgische procedures.
De lobotomie werd populair gemaakt in de VS door Walter Freeman. Hij ontwikkelde de transorbitale lobotomie, een nieuwe techniek zonder schedelboring. Nadat een patiënt d.m.v. een elektroshock bewusteloos wordt gemaakt, wordt een ijspriem met een hamer door de oogkas zeven centimeter diep in de hersenen geslagen.[3][4] Vanaf 1945 tot 1960 prees hij orbitale lobotomie aan als effectieve behandelmethode. De nieuwe, relatief eenvoudige ingreep duurt nog maar een paar minuten en kan overal, ook buiten de (dure) operatiekamer worden uitgevoerd. Hierdoor werd de lobotomie enige tijd gezien als een algemeen bruikbare behandelmethode voor allerlei problemen, zoals zelfs wangedrag van kinderen. Uiteindelijk hebben in de VS ca. 40.000, in het Verenigd Koninkrijk ca. 17.000 en in Scandinavië ca. 9300 mensen een dergelijke operatie ondergaan (onder wie Rosemary Kennedy, de zus van John F. Kennedy), zonder dat er verder ernstig onderzoek naar de effectiviteit van de methode werd gedaan. Lobotomie wordt niet langer toegepast, omdat resultaten slechter bleken dan aanvankelijk gerapporteerd werd.[5] In veel landen waaronder Nederland werd lobotomie verboden. In de Sovjet-Unie werd lobotomie op 12 december 1950 verboden. Ook Duitsland en Japan waren een van de eerste landen waar lobotomie reeds in de jaren vijftig verboden werd.[6]Noorwegen kende een schadevergoeding toe aan de nog levende slachtoffers van lobotomie.[7] De methode vindt nu nog steeds, in een lichtere vorm, toepassing in een aantal landen waaronder Spanje en het Verenigd Koninkrijk.[8] Er bestaat nu een nieuwe versie cingulotomie genoemd, die hersenweefsel wegbrandt met elektriciteit.
Lobotomie in Literatuuren Film
In de literatuur is lobotomie verwerkt in onder meer One Flew Over the Cuckoo’s Nest door Ken Kesey. In deze roman uit 1962, die in 1975 werd verfilmd door Miloš Forman, wordt impliciet forse kritiek op de psychiatrie geuit, en wordt de lobotomie die de hoofdpersoon ondergaat behoorlijk extreem. Suddenly, Last Summer is een Amerikaanse film uit 1959 onder regie van Joseph L. Mankiewicz, gebaseerd op een toneelstuk van Tennessee Williams, waarin een chirurg een lobotomie weigert op een vrouw met waanideeën sinds de gruwelijke moord op haar neef. In de film Frances uit 1982 wordt op een gruwelijke manier een lobotomie getoond. De film is gebaseerd op het leven van actrice Frances Farmer. Haar opstandigheid werd geïnterpreteerd als een psychische stoornis. De film zou evenwel op dat punt niet waarheidsgetrouw zijn. Zij zou nooit zo’n behandeling ondergaan hebben. In de Franse oorlogsfilm Un amour à taire uit 2005 wordt lobotomie door de nazi’s toegepast in concentratiekamp Dachau bij experimenten om het gedrag van homoseksuelen te veranderen. In de Amerikaanse film Shutter Island, met Leonardo DiCaprio in de hoofdrol, kiest de hoofdpersoon vermoedelijk bewust voor lobotomie. Een Amerikaanse fantasiefilm Sucker Punch uit 2011 toont toepassing van lobotomie om de hoofdpersoon het recente verleden en haar eigen identiteit te laten vergeten. In seizoen 2 van de dramaserie American Horror Story wordt een lobotomie bij een vrouw toegepast om haar te helpen bij haar schizofrenie. In het boek Alabama Song van Gilles Leroy over het echtpaar Fitzgerald (van The Great Gatsby) wordt er lobotomie toegepast op de vrouw van F. Scott Fitzgerald, Zelda Fitzgerald. Ook in de series Prison Break, Cold Case en Jeffrey Dahmer worden lobotomien toegepast.
In het lied Lobotomie van The Amazing Stroopwafels wordt om de ingreep gevraagd om een geliefde te kunnen vergeten.
This Film describes and demonstrates A Prefrontal Lobotomy, an Operative Procedure employed in Mental Disorders Resistive to Other Methods of Treatment. The Procedure consists of Cutting the White Matter in Each Frontal Lobe in the Plane of the Coronal Suture. This passes Just Anterior to the Frontal Horn of the Ventricle and interrupts the Anterior Thalamic Radiation. This Film includes A Written Description of the Procedure, Review of Landmarks on the Skull and Frontal Lobe on A Demonstration Skull and Brain, Operation on A Live Patient, and X Rays taken after the Operation. Filmed with Cooperation of George Washington University.
In her Early Young Adult Years, Rosemary Kennedy experienced seizures and violent mood swings. In Response to these Issues, her Father arranged APrefrontalLobotomy for her in 1941 when she was 23 Years of Age. The Procedure left her Permanently Incapacitated and Rendered her Unable to Speak Intelligibly.
Rosemary Kennedy spent Most of the Rest of her Life being Cared for at St Coletta, an Institution in Jefferson, Wisconsin. The Truth about her Situation and Whereabouts was Kept Secret for Decades. While she was Initially Isolated from her Siblings and Extended Family following her Lobotomy, Rosemary did go on to Visit them during her Later Life.
Rose Marie Kennedy was Born at her Parents Home in Brookline, Massachusetts. She was the Third Child and First Daughter of Joseph P Kennedy Sr and Rose Fitzgerald. She was Named after her Mother [1] and was Commonly Called Rosemary or Rosie. During her Birth, the Doctor was Not Immediately Available because of an Outbreak of the Spanish influenza Epidemic and the Nurse ordered Rose Kennedy to keep her Legs Closed, forcing the Baby’s Head to Stay in the Birth Canal for Two Hours. The Action resulted in A Harmful Loss of Oxygen. [2] As Rosemary began to grow, her Parents Noticed she was Not Reaching the Basic Developmental Steps A Human Normally reaches at A Certain Month or Year. At Two Years Old, she had A Hard Rime Sitting Up, Crawling, and Learning to Walk. [3] [better source needed]
Accounts of Rosemary’s Life Indicated that she was Intellectually Disabled, [4][5] although some have Raised Questions about the Kennedys’ Accounts of the Nature and Scope of her Disability. [6]A Biographer wrote that Rose Kennedy did Not Confide in her Friends and that she Pretended her Daughter was Developing Typically, with Relatives Other than the Immediate Family knowing Nothing of Rosemary’s Reported Low IQ. [7][8] Despite the Help of Tutors, Rosemary had Trouble Learning to Read and Write. At Age 11, she was sent to A Pennsylvania Boarding School for the Intellectually Disabled. [5]
At Age 15, Rosemary was Sent to the Sacred Heart Convent in Elmhurst, Providence, Rhode Island, where she was Educated Separately from the Other Students. Two Nuns and A Special Teacher, Miss Newton, worked with her All Day in A Separate Classroom. The Kennedys gave the School A New Tennis Court for their Efforts. Her Reading, Writing, Spelling, and Counting Skills were Reported to be at A Fourth Grade level. During this Period, her Mother arranged for her Older Brother John to accompany her to A Tea Dance. Thanks to him, she Appeared “Not Different at All” during the Dance. [9]
Rosemary read Few Books but could Read Winnie the Pooh. [10] DiariesWwritten by her in the Late 1930′s, and Published in the 1980‘s, reveal A Young Woman whose Life was Filled with Outings to the Opera, Tea Dances, Dress Fittings, and other Social Interests. [11] Kennedy accompanied her Family to the Coronation of Pope Pius XII in Rome in 1939. She also Visited the White House. [6] Kennedy’s Parents told Woman’s Day that she was “Studying to be A Kindergarten Teacher,” and Parents was told that while she had “An Interest in Social Welfare Work, she is Said to Harbor A Secret Longing to Go on the Stage.” When The Boston Globe requested an Interview with Rosemary, her Father’s Assistant prepared A Response which Rosemary Copied Out Laboriously.
“I have Always had Serious Tastes and understand Life is Not Given us Just for Enjoyment. For Some Time Past, I have been Studying the Well Known Psychological Method of DrMaria Montessori and I got my Degree in Teaching Last Year.” [12]
In 1938, Kennedy was Presented as ADebutante to King George VI and Queen Elizabeth at Buckingham Palace during her Father’s Service as the United States Ambassador to the United Kingdom. [13] Kennedy practised the Complicated Royal Curtsy for Hours. At the Event, she Tripped and Nearly Fell. Rose Kennedy Never Discussed the Incident and Treated the Debut as a Triumph. The Crowd made No Sign, and the King and the Queen smiled as if Nothing had Happened. [14]
Lobotomy
According to Rosemary’s sister Eunice Kennedy Shriver, when Rosemary returned to the United States from the United Kingdom in 1940, she regressed; Shriver later stated that Rosemary became “‘increasingly irritable and difficult'” at the age of 22.[8] Rosemary would often experience convulsions[15] and fly into violent rages in which she would hit and injure others[5] during this period. After being expelled from a summer camp in western Massachusetts and staying only a few months at a Philadelphia boarding school, Rosemary was sent to a convent school in Washington, D.C.[5] Rosemary began sneaking out of the convent school at night.[16] The nuns at the convent thought that Rosemary might be involved with sexual partners, and that she could contract a sexually transmitted disease[6] or become pregnant.[17] Her occasionally erratic behavior frustrated her parents; her father was especially worried that Rosemary’s behavior would shame and embarrass the family and damage his and his children’s political careers.[18][5]
When Rosemary was 23 years old, doctors told her father that a form of psychosurgery known as a lobotomy would help calm her mood swings and stop her occasional violent outbursts.[19][20] Joseph Kennedy decided that Rosemary should have a lobotomy; however, he did not inform his wife of this decision until after the procedure was completed.[18][21] The procedure took place in November 1941.[4][22] In Ronald Kessler’s 1996 biography of Joseph Kennedy, Sins of the Father, James W. Watts, who carried out the procedure with Walter Freeman (both of George Washington University School of Medicine), described the procedure to Kessler as follows:
After Rosemary was mildly sedated, “We went through the top of the head,” Dr. Watts recalled. “I think she was awake. She had a mild tranquilizer. I made a surgical incision in the brain through the skull. It was near the front. It was on both sides. We just made a small incision, no more than an inch.” The instrument Dr Watts used looked like a butter knife. He swung it up and down to cut brain tissue. “We put an instrument inside“, he said. As Dr Watts cut, Dr Freeman asked Rosemary some questions. For example, he asked her to recite the Lord’s Prayer or sing “God Bless America” or count backward (…) “We made an estimate on how far to cut based on how she responded.” When Rosemary began to become incoherent, they stopped. [23]
Watts told Kessler that in his opinion, Rosemary did not have “Mental Retardation” but rather had a form of depression. A review of all of the papers written by the two doctors confirmed Watts’ declaration. All of the patients the two doctors lobotomized were diagnosed as having some form of mental disorder. [24]Bertram S. Brown, director of the National Institute of Mental Healthwho was previously an aide to President Kennedy, told Kessler that Joe Kennedy referred to his daughter Rosemary as mentally retarded rather than mentally ill in order to protect John’s reputation for a presidential run, and that the family’s “lack of support for mental illness is part of a lifelong family denial of what was really so”.[25]
It quickly became apparent that the procedure had not been successful. Kennedy’s mental capacity diminished to that of a two-year-old child. She could not walk or speak intelligibly and was incontinent.[26]
Aftermath
After the lobotomy, Rosemary was immediately institutionalized. She initially lived for several years at Craig House, a private psychiatric hospital 90 minutes north of New York City.[27] In 1949, she was relocated to Jefferson, Wisconsin, where she lived for the rest of her life on the grounds of the St. Coletta School for Exceptional Children (formerly known as “St. Coletta Institute for Backward Youth”).[28] Archbishop Richard Cushing had told her father about St. Coletta’s, an institution for more than 300 people with disabilities, and her father traveled to and built a private house for her about a mile outside St. Coletta’s main campus near Alverno House, which was designed for adults who needed lifelong care.[29] The nuns called the house “the Kennedy cottage”.[30] Two Catholic nuns, Sister Margaret Ann and Sister Leona, provided her care along with a student and a woman who worked on ceramics with Rosemary three nights a week.[31] Rosemary had a car that could be used to take her for rides and a dog which she could take on walks.[30]
In response to her condition, Rosemary’s parents separated her from her family. Rose Kennedy did not visit her for 20 years.[18] Joseph P. Kennedy Sr. did not visit his daughter at the institution.[32] In Rosemary: The Hidden Kennedy Daughter, author Kate Clifford Larson stated that Rosemary’s lobotomy was hidden from the family for 20 years; none of her siblings knew of her whereabouts.[33] While her older brother John was campaigning for re-election for the Senate in 1958, the Kennedy family explained away her absence by claiming she was reclusive. The Kennedy family did not publicly explain her absence until 1961, after John had been elected president. The Kennedys did not reveal that she was institutionalized because of a failed lobotomy, but instead said that she was deemed “mentally retarded”.[18][34] In 1961, after Joseph P. Kennedy Sr. had a stroke that left him unable to speak and walk, Rosemary’s siblings were made aware of her location.[33] Her lobotomy did not become public knowledge until 1987.[35]
Later Life
Following her father’s death in 1969, the Kennedys gradually involved Rosemary in family life again.[6] Rosemary was occasionally taken to visit relatives[33] in Florida and Washington, D.C., and to her childhood home on Cape Cod. By that time, Rosemary had learned to walk again, but did so with a limp. She never regained the ability to speak clearly, and her arm was palsied.[18] Her condition is sometimes credited as the inspiration for Eunice Kennedy Shriver to later found the Special Olympics,[18] although Shriver told The New York Times in 1995 that Rosemary was just one of the disabled people she would have over to her house to swim, and that the games should not focus on any single individual.[36]
Rosemary Kennedy died from natural causes[37] on January 7, 2005, aged 86,[38] at the Fort Atkinson Memorial Hospital in Fort Atkinson, Wisconsin[39] with her siblings (sisters Jean, Eunice, and Patricia and brother Ted) by her side.[38] She was buried beside her parents in Holyhood Cemetery in Brookline, Massachusetts.[40][41]
Leamer, Laurence, The Kennedy Women: The Saga of an American Family, referenced in Associated Press article, Retarded Kennedy Sister Dies at 86, (Saturday, January 8, 2005
Valenstein, Elliot S. Great and Desperate Cures: The Rise and Decline of Psychosurgery and Other Radical Treatments for Mental Illness. Basic Books, 1986).
Shriver, Timothy (2014). Fully Alive: Discovering What Matters Most. New York, NY: Sarah Crichton Books-Farrar, Straus and Giroux.
Larson, Kate. Rosemary: The Hidden Kennedy Daughter.
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